MATEs FORUM

Hello Dear MPN Family :) I wanted to pop by and let you know that I have uploaded a couple of videos to help with relaxation. The first video is a Yoga Nidra (Yogic sleep). Yoga Nidra is a form of guided meditation and relaxation technique that leads you into a state of conscious deep sleep. It's of...

Hello Dear MPN Family! I hope that you are all doing well :) For those of you that would like to try a FREE online chair yoga class I have recently uploaded a short 10 minute morning chair yoga dance video to my You Tube channel. It will help you to start your day with graceful chair yoga that will ...

Hi Merry

I would love to have you join the course!

Steve can pass on my details or you can email me through my website https://www.inspiremovementcoaching.com/contact-8

Let me know if you have any questions.

Wishing you wellness and joy,
Amanda

Hi Steve! I will look out for the email from Maria :) The course can be accessed from anywhere in the world! All of the videos are pre-recorded so you can access them in a time that is convenient for you :) In a few weeks I will also be uploading FREE yoga and meditation videos to my YouTube page. E...

Hi Katie :) I would love you to try the course! It is completely self paced and there are step by step instructions. You only do as much or as little as you want :) 5-10 minuets a day is absolutely fine. Also Included in the course are meditations and breathing techniques which are so beneficial whe...

Hello Everyone, 😊 I wanted to drop in and share some exciting news with you! I've created an online chair yoga course and I'm thrilled to offer it for FREE to all members on this forum who are living with a blood cancer diagnoses. Although it's promoted as a teacher training, I've carefully designed...

Hi Steve Thank you for clarifying the NGS testing for me :) What a difference it could make in our treatment. It would be amazing if/when it becomes free. Having an MPN and all the symptoms that comes along with it can really affect the finances. I found Covid tough going. I think I caught it while ...

Hi Steve Thank you as always for taking the time to keep us updated with any new formation. Can I just ask, are the NGS the tests used to diagnose JAK 2 & Carl mutations or are they to test for further mutations within the JAK 2 and Carl mutations? I'm just trying to get my head around it all be...

Thank you for replying Steve 🙂 I think it was MPN Voice that I saw the post. I also read about Ritalin being prescribed for chronic fatigue syndrome. The adictive qualities are a worry. I will bring it up with my specialist when I see him this week and see what he thinks. I have a feeling he won't b...

Hi everyone I have a quick question for you 🙂 In my ongoing battle against fatigue, I found a post on another forum about someone with an MPN having success with Ritalin. My doctor has prescribed me amitriptyline for my fatigue which I'm not completely happy with as I am feeling even more tired than...

Thank you for posting this
I have just started taking beetroot in the mornings to try and combat fatigue.
I will let you know how I get on!

Hi Steve and Katie Yes, it would be so helpful to have your numbers. Thank you so much 🙂 Im going to contact Dr Forsyth for a second opinion once I get my results from my BMB biopsy back. It would be great if my haematologist here on the GC could connect with her as well. Thank you for the heads up ...

Hi Steve Thank you so much for all of the information and also for the link explaining the three MPN's. I really feel for you and how you were diagnosed. That must have been such a terrible shock and a hard thing to go through. You are very strong to have turned your situation around, particularly r...

Thank you so much for all of your replies :) I really appreciate it. This forum is making me feel less alone. I have been doing a lot of reading on the internet trying to understand how the three MPN's are diagnosed. My specialist thinks I may have scaring on my bone marrow because of my symptoms. I...

Hi Steve Thank you so much for your reply :) I'm still feeling overwhelmed by it all. At the same time I'm relieved to finally know why I have had exhaustion to my very bones over the years. I have night sweats, itching hands and feet, rashes and aura migraines but the exhaustion has been debilitati...

Hello

I was diagnosed yesterday with ET JAK2 Positive. I'm 49 years old. I'm having a bone marrow biopsy next Friday. My specialist is Dr Stylian on the Gold Coast.
I'm feeling so drained by the whole situation. It's been a long road getting to this point.

Thank you for making this forum available.