MATEs FORUM

Is that 6pm Sydney time? I’m in Adelaide so I will join the meeting at 5.30pm I assume

Hi Leon,
Thanks for the welcome, yes I look forward to joining the next cafe meeting,
Kind regards,
Helen

Thanks Steve

Hi Steve,
Thanks but it wasn’t this one, I have listened to this. I think the one I viewed had Chris Harmer in the video or some other fellow discussing his experience with his SCT

Hi everyone,
I was l watching a video yesterday on stem cell transplants that was posted in this forum, now I can’t find it. Does anyone have any idea where it is posted?

Hi Peter, Thanks for the welcome, yes we are lucky to have Professor David Ross as well as Professor Daniel Thomas here in Adelaide. I have already made some dietary changes and have kept myself very fit over the years. I look forward to hearing other’s experience on this forum, it’s nice to feel no...

Thankyou Steve & Katie, I will look into the anti- inflammatory diet, I do exercise & keep fit at the gym, running on treadmill & do weights. I’m not very tech savvy but will have a go at joining a coffee chat. Also I would be keen to chat to Warwick about his experiences as I will one d...

Hi Steve, Thanks for the welcome! It’s nice to feel not so alone with our rare cancers. Thanks for your detailed response & sharing your story. Good news that the anti inflammatory diet is working. Is it any diet in particular? I wouldn’t mind looking into an inflammatory diet. So you were diagn...

Hi there, I am new to the group. I’m 58 years old, diagnosed with post ET Myelofibrosis in November 2023. It’s been a massive blow and still coming to terms with it, the unknowns etc. I have the JAK 2 mutation only. I have been taking Jakavi since diagnosis which has reduced my spleen, stopped the n...