MATEs FORUM

Gosh Steve 😳🫢😮‍💨 I’m so sorry to hear this has happened to you again 🫣 It’s a really painful time to work through and I wish I had a magic wand to point your way 🪄 We are back now 10 days in Oz. We had a wonderful time away. I look forward to catching up with everyone again at our next chat. Take go...

Good morning from Sydney International airport 👋🏻 Just thought I’d share that when I went through the full body scanner, I was called aside for a pat down. The scanner showed up the site of where I injected my Pegasys last Thursday. I had no metal or anything else of interest so after a look, they p...

On the zoom a few weeks ago, I shared that my doctor had referred me to a cardiologist for chest/jaw/L arm pressure/discomfort on exertion. I had some tests done and given some spray to use when necessary. Mark also shared that he too had experienced this discomfort and we were not sure what was cau...

Hi 👋🏻 I heard this mentioned on the news this morning and thought I’d share it here. Sounds great 👏🏻 https://www.sbs.com.au/news/podcast-episode/new-treatment-brings-hope-for-patients-diagnosed-with-rare-cancer/zzq0ptdud News Podcasts – TRANSCRIPT Around 100,000 Australians live with myelofibrosis, ...

Thanks Steve, did you record the meeting with Dr Cecily at all?

Welcome, Mitch 🤩 I’m fairly new here myself too. Steve and the group are amazing 👏🏻🤩👏🏻 I am the same as you ET Jak 2+ diagnosed early 2020. I was on Hydrea for 6 months and didn’t like the side effects so went off it. We were travelling overseas and my haematologist was nervous for me to only be on ...

Just to finish off, the delivery went well. I got a text the next day to say the Pegasys was coming that day. I had a day full of appointments so I phoned JustMeds to ask when it would come so I could ask my husband to be home to receive it. David answered the phone and said he would find out and ph...

Well to follow up, I received an email this morning to say my Pegasys would be delivered today. Tho it didn’t say what timeframe. Then I received a text to say it would come today but to make sure someone was there to accept and sign for it. I phoned JustMeds for a narrower timeframe as I had a full...

You’re welcome, Steve.
It was good to be involved in the forum chat on Sunday night and learn from you all.
Getting hold of the information was a group effort
I look forward to hearing what Dr Forsyth has to recommend

Good afternoon from South East Qld 👋 Just writing to share my experience with not being able to source my Pegasys in the last week. Chemist Warehouse sent me the usual text to see if I wanted to order my Pegasys and I said yes 👌🏻 Due to the price they don’t keep it in stock and order it in each time...

Thank you Steve, a very interesting post

Thank you, Kate 🌸 I will try to get to the Coffee Catch Up on the 8th🤩 I’m sorry to hear you have progressed to MF 😔 My haematologist said progression is highly unlikely tho I have read online that there is quite a lot of it 😧 I do hope for a reasonably uneventful future 🤞🏻 Best wishes and I look fo...

Good morning to you all 🤩 Thanks to Steve, I’ve finally managed to join the forum 😌 and I’m very pleased to be here. I was diagnosed with ET JAK2 early last year and was on Hydrea for 6 months. I stopped due to being too you comfortable with the side effects. I began on Pegasys in June this year. I’...