MATEs FORUM

Just wanted to say thank you to all those who took part in the Zoom meeting, and a big thank you to Steve for arranging it, and Maz for her help on the day. I know there were technical problems, but it was lovely to catch a glimpse of some of you and to hear your voices. I know very few people with ...

Hi Steve, Sorry not to be able to be of help regarding Katie's leg ulcers. It must be awful for her having them and I hope that they do start to heal soon. I do know of various people with leg ulcers (caused by things other than HU) who have reported improvement with using manuka honey on them. Rega...

Hi Steve, Congratulations on the launch of this new site. It is very nice to see this nugget of MPN information and help appearing in this part of the world. I do look forward to it growing and flourishing as people become aware of it and start to post and help one another. Very Best Wishes, Peter (...

Hi Kate, I have ET and have been on Hydroxyurea for the last 14 months or so. I am in New Zealand and my haematologist can only offer me Anagrelide or "ordinary" Interferon (not the slow release Pegasys) if I eventually cannot tolerate the Hydroxyurea. I have done quite a bit of thinking a...