MATEs FORUM

Hi Rachel I agree with you.... there are certainly some issues happening which obviously you will need to get on top of as quickly as possible. I'm not sure why your Haematologist doesn't want to compromise in this situation. I am currently on Ruxolitinib 15 mg twice daily and 45 mcg once a week of ...

Hi Sue
Those results sound great and seeing the naturopath is working well for you. It's all positive Sue.... would you like to meet up for that herbal tea before your trip.
Regards
Garry

Hi Sue Good luck on the blood test. So how many days ago did you take the 135 and what did you increase from.... and you were saying you have no adverse issues which is sensational. Please let me know if there is a difference in your blood counts. going to the higher dose there should be... maybe. R...

Hi Susie B Good to hear your platelets are finally coming down. As Steven said I am on Interferon once a week injection of 45ug. I did take 90 and then 135ug but had to drop back down just because it was too much too soon. My platelets and Hemoglobin have dropped but then again I am on a combination...

Hi Misty Great to hear from you and a very warm welcome...... There are many challenges those with an MPN have but work with your Doctor and don't be afraid to ask as many questions as you can when you next see Dr Bilmon We are all here as a backstop for each other when things get a little tough and...

Hi Kate Hello and welcome to the site... 13 years is such a long time on HU. Have you spoken to your specialist regarding pegylated Interferon. I am on a combination therapy and Interferon is part of that combination the slow release version is used once a week, after speaking to my specialist his t...