Search found 10 matches
- Sun May 23, 2021 6:44 am
- Forum: MATEs FORUM
- Topic: Introduction
- Replies: 23
- Views: 27049
Re: Introduction
HI Warwick, thanks for the details on your situation. I found it informative. Do you mind if I ask some questions. Yourself or anyone else can answer if they wish. As Steve says on the forum, we should be our own advocate. Which I agree with. I like to build knowledge of the disease. Some questions ...
- Sun May 23, 2021 4:59 am
- Forum: MATEs FORUM
- Topic: Introduction
- Replies: 23
- Views: 27049
Re: Introduction
MPN-MATE Admin wrote: ↑Sat May 22, 2021 8:38 pmYea, id like to see Manoharan as he is not to far away. Does anyone have his contact details or do i just call St George Hospital ?
- Sat May 22, 2021 4:25 pm
- Forum: MATEs FORUM
- Topic: Introduction
- Replies: 23
- Views: 27049
Re: Introduction
Just wanted to say I empathise with the depression especially, it makes Peg Interferon a no no for us which is a bummer. Hi Jaqi Thanks for your warm welcome. Yea, as there does seem to be many other options medication wise, i think i just have to make peace with Hydroxy and live with. However, i d...
- Sat May 22, 2021 4:18 pm
- Forum: MATEs FORUM
- Topic: Introduction
- Replies: 23
- Views: 27049
Re: Introduction
Hi Alan.
Dr started me on Hydroxy because im prone to depression. She said pegasy can cause depression as a side effect. Any thoughts on that?
- Sat May 22, 2021 4:15 pm
- Forum: MATEs FORUM
- Topic: Introduction
- Replies: 23
- Views: 27049
Re: Introduction
Hi Bredan, Is Pegasy the injection? If it is, we discussed it at beginning of my treatment. In some people it can cause depression. I had suicidal depression for many year and it was a hard battle to free myself from it. I Fearful to go back there. For that reason, specialist started me on Hydroxy. ...
- Mon May 17, 2021 4:44 am
- Forum: MATEs FORUM
- Topic: Introduction
- Replies: 23
- Views: 27049
Re: Introduction
Nice to meet you Misty. I have tinnitus also but only on left side. I never really thought of it as a symptom of ET until your now mentionioned it.
- Sat May 15, 2021 7:11 am
- Forum: MATEs FORUM
- Topic: Introduction
- Replies: 23
- Views: 27049
Re: Introduction
Nice to meet you Merry, Mark and Silver.
Those fatigue bombs
One day i feel super, then bam!
Those fatigue bombs
One day i feel super, then bam!- Sat May 15, 2021 7:01 am
- Forum: MATEs FORUM
- Topic: Introduction
- Replies: 23
- Views: 27049
Re: Introduction
[quote="MPN-MATE Admin" post_id=937 time=1620976648 Do let me know how you get on w/ the Doctors I have mentioned to you... ....please also ask some of the other members about who they are seeing, and how that's working out for them. ...Avatar pic? [/quote] Hi Steve, i will do all those th...
- Fri May 14, 2021 4:51 pm
- Forum: MATEs FORUM
- Topic: Introduction
- Replies: 23
- Views: 27049
- Fri May 14, 2021 10:40 am
- Forum: MATEs FORUM
- Topic: Introduction
- Replies: 23
- Views: 27049
Introduction
Hello mates, i have just joined and wanted to introduce myself. Ive had ET Jak2+ since 2008 (i was 34 and av platelet count wad 1300). I have only started taking Hydroxy in 2019 because my spleen was growing to big. Now on Hydroxy and Aspirin. Platelets normalized. Platelets size and morphology not ...