Changing from rux to pegasys plus rux for mf
Posted: Thu Jul 25, 2019 7:25 pm
Hi. I'm having a grim time at present, as the increased risk of aggressive skin cancers triggered by the ruxolitinib I’m taking ( was inc to 20mg bd at end December to help the fatigue ( it didn’t) ( now back to 15mg bd) haunts me. I’ve already had one SCC excised from my face, as I’d posted, and a BCC taken off my back. I’d thought that reducing the rux and adding in Pegasys would make sense, My blood counts are stable: main issue was fatigue. ,
My haematologist doesn’t see it that way, despite the ongoing ruxopeg trials ( not at his hospital). His only offer so far is to be on the rux, or discontinue it .
Has anyone here with MF tried reducing rux and adding Peg? What was the dose/ sxgedule you used? Are there any haems on the UK who do this? If my haem had an apprpriate opinion he might be prepared to consider it
Prof Kiladjian in Paris ( who runs the ruxopeg trials) has no apts till 2020 - my sister lives in Patris and did some research for me.
Suggestions of UK haems to approach would be welcome .
My haematologist doesn’t see it that way, despite the ongoing ruxopeg trials ( not at his hospital). His only offer so far is to be on the rux, or discontinue it .
Has anyone here with MF tried reducing rux and adding Peg? What was the dose/ sxgedule you used? Are there any haems on the UK who do this? If my haem had an apprpriate opinion he might be prepared to consider it
Prof Kiladjian in Paris ( who runs the ruxopeg trials) has no apts till 2020 - my sister lives in Patris and did some research for me.
Suggestions of UK haems to approach would be welcome .
